Relentlessly accelerating science and unifying the global ecosystem to move from symptom management to a definitive cure for everyone living with Mevalonate Kinase Deficiency.
GABRIELA'S story
Our Inspiration
This mission was born from my daughter Gabriela’s battle with Mevalonic Aciduria, the most severe form of Mevalonate Kinase Deficiency.
From a grueling three-month fight for her life in the hospital to ongoing hardships and frequent hospitalizations, Gabriela’s resilience revealed a hard truth: the status quo is not enough. Her journey is the heartbeat of this foundation and the reason we will not stop until we find a cure.
We take a global approach and invest in teams that have a proven track record of taking the science out of the lab and delivering it to real patients.
Unifying the Ecosystem
We act as the essential bridge, connecting patients, clinicians, researchers, regulators, and industry partners via standardized data, processes, and networks.
Driving Strategic Action
We move processes in parallel rather than one after another, leading to faster results.
MKD COMMUNITY
Support Cure MKD
There are numerous ways to get involved and help find a cure for Mevalonate Kinase Deficiency.